Category Archives: Carers

Bereavement is a family affair

WE’RE DELIGHTED TO PRESENT THIS MONTH’S ‘EDITOR’S CHOICE’ FROM PALLIATIVE MEDICINE, THE OFFICIAL RESEARCH JOURNAL OF THE EAPC Each month, Professor Catherine Walshe, Editor-in-Chief of Palliative Medicine, chooses an article that readers may find particularly interesting or useful and invites the authors … Continue reading

Posted in BEREAVEMENT, Carers, EAPC-LINKED JOURNALS, Palliative Medicine: Editor's Choice, PATIENT & FAMILY CARE | Tagged | Leave a comment

‘This is your golden time. You enjoy it and you’ve plenty time for crying after’: How dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis

CATCH UP WITH SOME OF OUR ‘PAST POSTS’ – summer holidays are always a great time to catch up on articles you may have missed. Today, we’re republishing a post by Dominika Lisiecka, PhD, Lecturer, Department of Nursing and Healthcare Sciences, Institute … Continue reading

Posted in Carers, EAPC-LINKED JOURNALS, Neurology, Palliative Medicine: Editor's Choice, PATIENT & FAMILY CARE | Tagged , | 1 Comment

Caring precariously: Palliative care and welfare worker perspectives on end of life carers

WE’RE DELIGHTED TO PRESENT THIS MONTH’S ‘EDITOR’S CHOICE’ FROM PALLIATIVE MEDICINE, THE OFFICIAL RESEARCH JOURNAL OF THE EAPC Each month, Professor Catherine Walshe, Editor-in-Chief of Palliative Medicine, chooses an article that readers may find particularly interesting or useful and invites the authors … Continue reading

Posted in BEREAVEMENT, Carers, EAPC-LINKED JOURNALS, Palliative Medicine: Editor's Choice | Tagged , | 1 Comment

Supports needed for a good home death

CONTINUING OUR SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES   A mother is told bluntly that her 12-day-old baby is ‘intellectually zero’. Today, our guest writer, Maria Heaton, shares her personal experience as a mother who cared for her own two … Continue reading

Posted in Carers, Intellectual disabilities, Palliative Stories, PATIENT & FAMILY CARE, PSYCHO-SOCIAL ISSUES | Leave a comment

New EAPC Reference Group on Family Carers – The International Palliative Care Family Carer Research Collaboration (IPCFRC) 

Professor Peter Hudson, Chair, and Professor Gunn Grande, Co-Chair, The International Palliative Care Family Carer Research Collaboration (IPCFRC) European Association for Palliative Care (EAPC) Reference Group, introduce the work of one of the EAPC’s newest reference groups.   A core tenet of palliative … Continue reading

Posted in Carers, EAPC Task Forces/Reference Groups, PATIENT & FAMILY CARE, Social work | Tagged | Leave a comment