Category Archives: Intellectual disabilities

The challenges and triumphs of developing a survey on palliative care for people with intellectual disabilities around the world

CELEBRATING WORLD HOSPICE AND PALLIATIVE CARE DAY 2021.THIS YEAR’S THEME IS LEAVE NO ONE BEHIND – EQUITY IN ACCESS TO PALLIATIVE CARE In a special series, EAPC task forces and reference groups that work on behalf of vulnerable communities explain … Continue reading

Posted in ADVOCACY & POLICY, EAPC ACTIVITIES, EAPC Task Forces/Reference Groups, Intellectual disabilities, Minority Communities, World Hospice & Palliative Care Day | 1 Comment

Specialist palliative care staff’s experiences of talking with people with intellectual disability about their dying and death

WE’RE DELIGHTED TO PRESENT THIS MONTH’S ‘EDITOR’S CHOICE’ FROM PALLIATIVE MEDICINE, THE OFFICIAL RESEARCH JOURNAL OF THE EAPC Each month, Professor Catherine Walshe, Editor-in-Chief of Palliative Medicine, chooses an article that readers may find particularly interesting or useful and invites the … Continue reading

Posted in EAPC-LINKED JOURNALS, Intellectual disabilities, Palliative Medicine: Editor's Choice, RESEARCH | Tagged | Leave a comment

Supports needed for a good home death

CONTINUING OUR SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES   A mother is told bluntly that her 12-day-old baby is ‘intellectually zero’. Today, our guest writer, Maria Heaton, shares her personal experience as a mother who cared for her own two … Continue reading

Posted in Carers, Intellectual disabilities, Palliative Stories, PATIENT & FAMILY CARE, PSYCHO-SOCIAL ISSUES | Leave a comment

In-Dialogue: a conversation aid for shared decision-making with people with intellectual disabilities in the palliative phase

CONTINUING OUR NEW SERIES:  PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today’s guest writers are Hanna Noorlandt (Erasmus MC), Freek Felet (Prisma Foundation), Ida Korfage (Erasmus MC) and Michael Echteld (Prisma Foundation and Avans University of Applied Sciences) from The Netherlands. Here, they talk about a new … Continue reading

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Widening Access to Palliative and End of Life Care for People with Intellectual Disabilities: A multi-media, open access online resource

CONTINUING OUR NEW SERIES: PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… A new multi-media resource, based on what people with Intellectual Disabilities, family carers and professionals believe to be important when caring for people with intellectual disability at end of life, is … Continue reading

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