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Category Archives: Intellectual disabilities
The challenges and triumphs of developing a survey on palliative care for people with intellectual disabilities around the world
CELEBRATING WORLD HOSPICE AND PALLIATIVE CARE DAY 2021.THIS YEAR’S THEME IS LEAVE NO ONE BEHIND – EQUITY IN ACCESS TO PALLIATIVE CARE In a special series, EAPC task forces and reference groups that work on behalf of vulnerable communities explain … Continue reading
Specialist palliative care staff’s experiences of talking with people with intellectual disability about their dying and death
WE’RE DELIGHTED TO PRESENT THIS MONTH’S ‘EDITOR’S CHOICE’ FROM PALLIATIVE MEDICINE, THE OFFICIAL RESEARCH JOURNAL OF THE EAPC Each month, Professor Catherine Walshe, Editor-in-Chief of Palliative Medicine, chooses an article that readers may find particularly interesting or useful and invites the … Continue reading
In-Dialogue: a conversation aid for shared decision-making with people with intellectual disabilities in the palliative phase
CONTINUING OUR NEW SERIES: PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today’s guest writers are Hanna Noorlandt (Erasmus MC), Freek Felet (Prisma Foundation), Ida Korfage (Erasmus MC) and Michael Echteld (Prisma Foundation and Avans University of Applied Sciences) from The Netherlands. Here, they talk about a new … Continue reading
Widening Access to Palliative and End of Life Care for People with Intellectual Disabilities: A multi-media, open access online resource
CONTINUING OUR NEW SERIES: PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… A new multi-media resource, based on what people with Intellectual Disabilities, family carers and professionals believe to be important when caring for people with intellectual disability at end of life, is … Continue reading