Category Archives: Intellectual disabilities

Specialist palliative care staff’s experiences of talking with people with intellectual disability about their dying and death

Posted on April 26, 2021 by pallcare

WE’RE DELIGHTED TO PRESENT THIS MONTH’S ‘EDITOR’S CHOICE’ FROM PALLIATIVE MEDICINE, THE OFFICIAL RESEARCH JOURNAL OF THE EAPC Each month, Professor Catherine Walshe, Editor-in-Chief of Palliative Medicine, chooses an article that readers may find particularly interesting or useful and invites the … Continue reading →

Posted in EAPC-LINKED JOURNALS, Intellectual disabilities, Palliative Medicine: Editor's Choice, RESEARCH | Tagged | Leave a comment

Supports needed for a good home death

Posted on November 30, 2020 by pallcare

CONTINUING OUR SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES   A mother is told bluntly that her 12-day-old baby is ‘intellectually zero’. Today, our guest writer, Maria Heaton, shares her personal experience as a mother who cared for her own two … Continue reading →

Posted in Carers, Intellectual disabilities, Palliative Stories, PATIENT & FAMILY CARE, PSYCHO-SOCIAL ISSUES | Leave a comment

In-Dialogue: a conversation aid for shared decision-making with people with intellectual disabilities in the palliative phase

Posted on November 9, 2020 by pallcare

CONTINUING OUR NEW SERIES:  PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today’s guest writers are Hanna Noorlandt (Erasmus MC), Freek Felet (Prisma Foundation), Ida Korfage (Erasmus MC) and Michael Echteld (Prisma Foundation and Avans University of Applied Sciences) from The Netherlands. Here, they talk about a new … Continue reading →

Posted in Intellectual disabilities, PSYCHO-SOCIAL ISSUES | Tagged , | 1 Comment

Widening Access to Palliative and End of Life Care for People with Intellectual Disabilities: A multi-media, open access online resource

Posted on November 2, 2020 by pallcare

CONTINUING OUR NEW SERIES: PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… A new multi-media resource, based on what people with Intellectual Disabilities, family carers and professionals believe to be important when caring for people with intellectual disability at end of life, is … Continue reading →

Posted in Intellectual disabilities, PSYCHO-SOCIAL ISSUES | Tagged | Leave a comment

The PEPIC19 survey: An international survey of end-of-life and palliative care of people with intellectual disabilities

Posted on October 28, 2020 by pallcare

START OF NEW SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today, Irene Tuffrey-Wijne, Co-chair of the European Association for Palliative Care Reference Group on Intellectual Disability, encourages everyone involved in providing end-of-life and palliative care to complete this important survey.  … Continue reading →

Posted in EAPC ACTIVITIES, EAPC Task Forces/Reference Groups, Intellectual disabilities, PSYCHO-SOCIAL ISSUES | Tagged | Leave a comment