Category Archives: Intellectual disabilities

In-Dialogue: a conversation aid for shared decision-making with people with intellectual disabilities in the palliative phase

CONTINUING OUR NEW SERIES:  PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today’s guest writers are Hanna Noorlandt (Erasmus MC), Freek Felet (Prisma Foundation), Ida Korfage (Erasmus MC) and Michael Echteld (Prisma Foundation and Avans University of Applied Sciences) from The Netherlands. Here, they talk about a new … Continue reading

Posted in Intellectual disabilities, PSYCHO-SOCIAL ISSUES | Tagged , | 1 Comment

Widening Access to Palliative and End of Life Care for People with Intellectual Disabilities: A multi-media, open access online resource

CONTINUING OUR NEW SERIES: PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… A new multi-media resource, based on what people with Intellectual Disabilities, family carers and professionals believe to be important when caring for people with intellectual disability at end of life, is … Continue reading

Posted in Intellectual disabilities, PSYCHO-SOCIAL ISSUES | Tagged | Leave a comment

The PEPIC19 survey: An international survey of end-of-life and palliative care of people with intellectual disabilities

START OF NEW SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today, Irene Tuffrey-Wijne, Co-chair of the European Association for Palliative Care Reference Group on Intellectual Disability, encourages everyone involved in providing end-of-life and palliative care to complete this important survey. … Continue reading

Posted in EAPC ACTIVITIES, EAPC Task Forces/Reference Groups, Intellectual disabilities, PSYCHO-SOCIAL ISSUES | Tagged | Leave a comment

Palliative Care for People with Intellectual Disabilities: An International Perspective – An interview with Dr Irene Tuffrey-Wijne, winner of the EAPC Post-Doctoral Award

LIVE FROM THE 15th EAPC WORLD CONGRESS IN MADRID . . . Highlights of every EAPC Congress are the EAPC Researcher Awards, which recognise and support the work of scientists and clinicians who make an outstanding contribution to palliative care … Continue reading

Posted in 15th World Congress Madrid, EAPC Researcher Awards, EAPC World Congresses, Intellectual disabilities, PATIENT & FAMILY CARE | Tagged | Leave a comment

Palliative care for people with intellectual disabilities: The EAPC White Paper in a nutshell

Irene Tuffrey-Wijne is Associate Professor, Kingston University & St George’s University of London, and Chair of the European Association for Palliative Care (EAPC) Task Force on Intellectual Disabilities. Here, she explains the background to her  longer article published in the January/February … Continue reading

Posted in EAPC Task Forces/Reference Groups, EAPC White Papers, Guidelines & Recommendations, EAPC-LINKED JOURNALS, European Journal of Palliative Care, Intellectual disabilities | Tagged , | Leave a comment