Category Archives: Intellectual disabilities

Doing things differently, sharing power and holding to account: the evolution of No Barriers Here.

Posted on November 29, 2022 by pallcare

Over recent years, there has been an increased awareness of the inequalities in healthcare provision and palliative care. Individuals and organisations are working to change this, and today we hear from Gemma Allen and Dr Jed Jerwood about an exciting … Continue reading →

Posted in ADVANCE CARE PLANNING, Intellectual disabilities, Minority Communities, PATIENT & FAMILY CARE | Leave a comment

The challenges and triumphs of developing a survey on palliative care for people with intellectual disabilities around the world

Posted on October 9, 2021 by pallcare

CELEBRATING WORLD HOSPICE AND PALLIATIVE CARE DAY 2021.THIS YEAR’S THEME IS LEAVE NO ONE BEHIND – EQUITY IN ACCESS TO PALLIATIVE CARE In a special series, EAPC task forces and reference groups that work on behalf of vulnerable communities explain … Continue reading →

Posted in ADVOCACY & POLICY, EAPC ACTIVITIES, EAPC Task Forces/Reference Groups, Intellectual disabilities, Minority Communities, World Hospice & Palliative Care Day | 1 Comment

Specialist palliative care staff’s experiences of talking with people with intellectual disability about their dying and death

Posted on April 26, 2021 by pallcare

WE’RE DELIGHTED TO PRESENT THIS MONTH’S ‘EDITOR’S CHOICE’ FROM PALLIATIVE MEDICINE, THE OFFICIAL RESEARCH JOURNAL OF THE EAPC Each month, Professor Catherine Walshe, Editor-in-Chief of Palliative Medicine, chooses an article that readers may find particularly interesting or useful and invites the … Continue reading →

Posted in EAPC-LINKED JOURNALS, Intellectual disabilities, Palliative Medicine: Editor's Choice, RESEARCH | Tagged | Leave a comment

Supports needed for a good home death

Posted on November 30, 2020 by pallcare

CONTINUING OUR SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES   A mother is told bluntly that her 12-day-old baby is ‘intellectually zero’. Today, our guest writer, Maria Heaton, shares her personal experience as a mother who cared for her own two … Continue reading →

Posted in Carers, Intellectual disabilities, Palliative Stories, PATIENT & FAMILY CARE, PSYCHO-SOCIAL ISSUES | Leave a comment

In-Dialogue: a conversation aid for shared decision-making with people with intellectual disabilities in the palliative phase

Posted on November 9, 2020 by pallcare

CONTINUING OUR NEW SERIES:  PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today’s guest writers are Hanna Noorlandt (Erasmus MC), Freek Felet (Prisma Foundation), Ida Korfage (Erasmus MC) and Michael Echteld (Prisma Foundation and Avans University of Applied Sciences) from The Netherlands. Here, they talk about a new … Continue reading →

Posted in Intellectual disabilities, PSYCHO-SOCIAL ISSUES | Tagged , | 2 Comments