Category Archives: CHILDREN’S PALLIATIVE CARE

Interested in paediatric palliative care? A date for your diaries…

The European Association for Palliative Care (EAPC) is teaming up with the Norwegian Association for Children’s Palliative Care (FFB) to present a three-day congress on paediatric palliative care. Julie Ling, Chief Executive, EAPC, and Natasha Pedersen, Founder and Chief Executive, … Continue reading

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Utilising gaming to enhance palliative care for children – the MyPal Child study

Professor Julia Downing, MyPal team member and Chief Executive, International Children’s Palliative Care Network, explains how the MyPal Child study aims to incorporate ‘gaming’ – now a part of everyday life for many children and young people – within the healthcare … Continue reading

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Putting Paediatric Palliative Care Research into Practice in Palermo #EAPC2020

In the run-up to the 11th World Research Congress of the European Association for Palliative Care (EAPC) in Palermo, Sicily, in 2020, leading contributors will be giving a sneak peek of the congress programme. Today, Franca Benini, Myra Bluebond-Langner and Monika Fuehrer tell … Continue reading

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Abstract Watch: Current thinking in paediatric palliative care and transition to adult care

The palliative care (PC) needs of children living with a terminal or life-limiting illness are unique. Barry R. Ashpole is a Communications Consultant, Educator and Media Specialist from Ontario, Canada, who contributes a bi-annual post for the blog. Here, he presents … Continue reading

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Mind the language gap! A barrier in paediatric palliative care?

ONLY 71 DAYS TO #EAPC2019 …  AHEAD OF THE 16TH WORLD CONGRESS OF THE EUROPEAN ASSOCIATION FOR PALLIATIVE CARE TO BE HELD IN BERLIN, GERMANY, 23 TO 25 MAY 2019, WE BRING YOU SOME SPECIAL POSTS TO WELCOME YOU TO BERLIN. … Continue reading

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Can powerful personal stories at a world level make a difference? 

In 2015, Sharon Thompson, from Donegal, Ireland, shared the story of her daughter, Victoria, in a series entitled: Palliative stories from the perspective of patients and family carers published on the EAPC blog. Last month, Sharon’s passionate advocacy work for … Continue reading

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Paediatric Palliative Care Research Comes of Age: Call for papers for special issue of Paediatric Palliative Care

Guest Editors of the special issue of Paediatric Palliative Care, Professor Joanne Wolfe and Professor Myra Bluebond-Langner, invite contributions to this special issue of Palliative Medicine. Palliative Medicine’s call for papers for a special issue in Paediatric Palliative Care is a unique opportunity … Continue reading

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