Category Archives: CHILDREN’S PALLIATIVE CARE

Mind the language gap! A barrier in paediatric palliative care?

ONLY 71 DAYS TO #EAPC2019 …  AHEAD OF THE 16TH WORLD CONGRESS OF THE EUROPEAN ASSOCIATION FOR PALLIATIVE CARE TO BE HELD IN BERLIN, GERMANY, 23 TO 25 MAY 2019, WE BRING YOU SOME SPECIAL POSTS TO WELCOME YOU TO BERLIN. … Continue reading

Posted in 16th EAPC World Congress Berlin, CHILDREN'S PALLIATIVE CARE | Tagged , , | Leave a comment

Can powerful personal stories at a world level make a difference? 

In 2015, Sharon Thompson, from Donegal, Ireland, shared the story of her daughter, Victoria, in a series entitled: Palliative stories from the perspective of patients and family carers published on the EAPC blog. Last month, Sharon’s passionate advocacy work for … Continue reading

Posted in ADVOCACY & POLICY, CHILDREN'S PALLIATIVE CARE | Tagged | Leave a comment

Paediatric Palliative Care Research Comes of Age: Call for papers for special issue of Paediatric Palliative Care

Guest Editors of the special issue of Paediatric Palliative Care, Professor Joanne Wolfe and Professor Myra Bluebond-Langner, invite contributions to this special issue of Palliative Medicine. Palliative Medicine’s call for papers for a special issue in Paediatric Palliative Care is a unique opportunity … Continue reading

Posted in CHILDREN'S PALLIATIVE CARE, EAPC-LINKED JOURNALS, Palliative Medicine: Editor's Choice | Tagged | 2 Comments

Why my hat’s on for children’s palliative care – #HatsOn4CPC

CELEBRATING HATS ON FOR CHILDREN’S PALLIATIVE CARE – FRIDAY, 12 OCTOBER 2018 – a day to raise international awareness of the work of children’s hospices and children’s palliative care services worldwide.  Lizzie Chambers, Director of Research and Programmes, Together for … Continue reading

Posted in ADVOCACY & POLICY, Children and young people, CHILDREN'S PALLIATIVE CARE | Tagged | Leave a comment

Celebrating Hats On for Children’s Palliative Care – #HatsOn4CPC – 2018  

HATS ON FOR CHILDREN’S PALLIATIVE CARE – FRIDAY, 12 OCTOBER 2018 – a day to raise international awareness of the work of children’s hospices and children’s palliative care services worldwide. Ahead of this year’s Hats on for Children’s Palliative Care, Professor … Continue reading

Posted in ADVOCACY & POLICY, Children and young people, CHILDREN'S PALLIATIVE CARE | Tagged | Leave a comment

Lessons to be learned from children and adolescents approaching end of life – An interview with Dr Lorna Fraser, winner of the 2018 EAPC Post-Doctoral Award

Highlights of every EAPC Congress are the EAPC Researcher Awards, which recognise and support the work of scientists and clinicians who make an outstanding contribution to palliative care research.  We talk to Dr Lorna Fraser, winner of the 2018 EAPC Post-Doctoral … Continue reading

Posted in CHILDREN'S PALLIATIVE CARE, EAPC ACTIVITIES, EAPC Researcher Awards, EAPC World Research Congresses, INTERVIEWS & TRIBUTES | Tagged , | Leave a comment

Together We Can: Free resources to help you set up a volunteering support service for families of sick children

Lizzie Chambers, Development Director, Together for Short Lives, UK, rolled up her sleeves to volunteer in the home of a family caring for a child with a life-limiting condition. Lizzie explains how her organisation has developed the Family Support Volunteering … Continue reading

Posted in CHILDREN'S PALLIATIVE CARE, VOLUNTEERING IN PALLIATIVE CARE | Tagged , | Leave a comment