-
Recent Posts
- Evidence for the benefits of specialist palliative care is already compelling – it’s time to move on to research on comparing different ways of care delivery
- A year of fighting the racial inequality of COVID
- Inclusivity in palliative care – are we as good as we think?
- The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic
- Making ‘invisible’ nursing work visible: The work of oncology nurses in introducing early palliative care
Archives
Categories
- ABSTRACT WATCH
- Advance care planning
- ADVOCACY & POLICY
- BEREAVEMENT
- CHILDREN'S PALLIATIVE CARE
- EAPC ACTIVITIES
- EAPC COLLABORATIVE PROJECTS
- EAPC-LINKED JOURNALS
- EDUCATION & TRAINING
- INTERVIEWS & TRIBUTES
- NATIONAL & INTERNATIONAL REPORTS
- PATIENT & FAMILY CARE
- POSTS IN OTHER LANGUAGES
- RESEARCH
- SOCIAL MEDIA
- SPIRITUAL CARE
- Uncategorized
- VOLUNTEERING IN PALLIATIVE CARE
-
Most recent posts
- Evidence for the benefits of specialist palliative care is already compelling – it’s time to move on to research on comparing different ways of care delivery September 17, 2021
- A year of fighting the racial inequality of COVID September 16, 2021
- Inclusivity in palliative care – are we as good as we think? September 14, 2021
Follow Us
Follow Us
Follow Us
Follow Us
Links
Category Archives: Palliative Stories
Supports needed for a good home death
CONTINUING OUR SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES A mother is told bluntly that her 12-day-old baby is ‘intellectually zero’. Today, our guest writer, Maria Heaton, shares her personal experience as a mother who cared for her own two … Continue reading →
A tribute to Julia Franklin – a palliative care social worker who stood firm for caring relationships
In 2015, we published ‘Palliative Stories’, a series of posts from the perspective of patients and family carers. One of our contributors was Julia Franklin who described what it felt like to change gear from health professional to patient. We are … Continue reading →
Taking palliative care to the top: My meeting with Dr Tedros
Lucy Watts MBE is a patient advocate, a young person’s representative for numerous charities and projects, and founder of the Palliative Care Voices global patient advocacy network. Here, she describes a memorable meeting with the Director-General of the World Health Organization … Continue reading →
Posted in ADVOCACY & POLICY, Palliative Stories
|
Tagged Palliative Care Voices, Patient advocacy
|
Leave a comment
Part of what we lived through: Palliative Stories – the EAPC’s occasional series from the perspective of patients and family carers
Pauline from Germany recalls the tragic sequence of events during the illness of her husband and their 15-year-old son who died within three weeks of each other. Our son died three years ago from glioblastoma after one year of treatment at … Continue reading →
Posted in Carers, Palliative Stories, PATIENT & FAMILY CARE
|
Tagged Personal experiences of palliative care
|
3 Comments
The magic of Victoria: Palliative Stories – the EAPC’s blog series from the perspective of patients and family carers
Today we hear from Sharon Thompson from Donegal, Ireland, who shares the story of her daughter, Victoria. Sharon is a member of ‘Our Children’s Voice’, a group of parents who hope to give children who have life-limiting conditions or high … Continue reading →
