Category Archives: Palliative Stories

Supports needed for a good home death

CONTINUING OUR SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES   A mother is told bluntly that her 12-day-old baby is ‘intellectually zero’. Today, our guest writer, Maria Heaton, shares her personal experience as a mother who cared for her own two … Continue reading

Posted in Carers, Intellectual disabilities, Palliative Stories, PATIENT & FAMILY CARE, PSYCHO-SOCIAL ISSUES | Leave a comment

A tribute to Julia Franklin – a palliative care social worker who stood firm for caring relationships

In 2015, we published ‘Palliative Stories’, a series of posts from the perspective of patients and family carers. One of our contributors was Julia Franklin who described what it felt like to change gear from health professional to patient. We are … Continue reading

Posted in INTERVIEWS & TRIBUTES, Palliative Stories, PATIENT & FAMILY CARE, Social work | Tagged , | 2 Comments

Taking palliative care to the top: My meeting with Dr Tedros

Lucy Watts MBE is a patient advocate, a young person’s representative for numerous charities and projects, and founder of the Palliative Care Voices global patient advocacy network. Here, she describes a memorable meeting with the Director-General of the World Health Organization … Continue reading

Posted in ADVOCACY & POLICY, Palliative Stories | Tagged , | Leave a comment

Part of what we lived through: Palliative Stories – the EAPC’s occasional series from the perspective of patients and family carers

Pauline from Germany recalls the tragic sequence of events during the illness of her husband and their 15-year-old son who died within three weeks of each other.  Our son died three years ago from glioblastoma after one year of treatment at … Continue reading

Posted in Carers, Palliative Stories, PATIENT & FAMILY CARE | Tagged | 3 Comments

The magic of Victoria: Palliative Stories – the EAPC’s blog series from the perspective of patients and family carers

Today we hear from Sharon Thompson from Donegal, Ireland, who shares the story of her daughter, Victoria. Sharon is a member of ‘Our Children’s Voice’, a group of parents who hope to give children who have life-limiting conditions or high … Continue reading

Posted in Carers, CHILDREN'S PALLIATIVE CARE, Palliative Stories, PATIENT & FAMILY CARE | Leave a comment