Category Archives: ADVANCE CARE PLANNING

Advance care planning in dementia: announcing the EAPC task force’s second white paper

Posted on May 6, 2024 by pallcare

Advance care planning is important for everyone to make sure their wishes and values form part of their future care – and this is especially so for people with dementia. Ahead of the first Advance Care Planning Day (held in … Continue reading →

Posted in ADVANCE CARE PLANNING, ADVOCACY & POLICY, EAPC ACTIVITIES, EAPC Task Forces/Reference Groups, EAPC White Papers, Guidelines & Recommendations, PATIENT & FAMILY CARE | Leave a comment

‘In the eye of the storm, it’s sometimes quiet’: improving communication for young cancer patients and their parents.

Posted on March 26, 2024 by pallcare

Every fifteen minutes, somewhere in Europe, parents are faced with the devastating news that their child has cancer. Improving experience of care provided, for children and their parents, is important and a new research project has identified a need to … Continue reading →

Posted in ADVANCE CARE PLANNING, CHILDREN'S PALLIATIVE CARE, EAPC ACTIVITIES, EAPC Task Forces/Reference Groups, PATIENT & FAMILY CARE, RESEARCH | Leave a comment

A night at the museum: Engaging young people about dying with dementia.

Posted on January 16, 2024 by pallcare

On behalf of the Empowering Better End of Life Dementia Care (EMBED-Care) research team, Sophie Crawley, Emel Yorganci and Annabel Farnood tell us about a recent public engagement event that aimed to engage young adults with the themes of dementia … Continue reading →

Posted in ADVANCE CARE PLANNING, Dementia, PATIENT & FAMILY CARE, RESEARCH | Leave a comment

End of life care in the ICU: The invisible patient.

Posted on October 17, 2023 by pallcare

There are significant challenges in providing palliative care in India, including in Intensive Care. For the last blog in our palliative care and intensive care blog series, Seema R Rao reflects on the challenges of providing patient-centred, culturally sensitive care. … Continue reading →

Posted in ADVANCE CARE PLANNING, OPINION PIECES, Palliative Care and Intensive Care | 1 Comment

Empowering family carers to discuss advance care planning.

Posted on July 18, 2023 by pallcare

People with a serious illness often spend a lot of time with their family in the last months of life, during which they might face questions together regarding the uncertainty about the illness, what matters most to the person with … Continue reading →

Posted in ADVANCE CARE PLANNING, Carers, EAPC-LINKED JOURNALS, Journal of Palliative Medicine, Palliative Medicine: Editor's Choice, PATIENT & FAMILY CARE | Leave a comment