Category Archives: PSYCHO-SOCIAL ISSUES

In-Dialogue: a conversation aid for shared decision-making with people with intellectual disabilities in the palliative phase

CONTINUING OUR NEW SERIES:  PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today’s guest writers are Hanna Noorlandt (Erasmus MC), Freek Felet (Prisma Foundation), Ida Korfage (Erasmus MC) and Michael Echteld (Prisma Foundation and Avans University of Applied Sciences) from The Netherlands. Here, they talk about a new … Continue reading

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Widening Access to Palliative and End of Life Care for People with Intellectual Disabilities: A multi-media, open access online resource

CONTINUING OUR NEW SERIES: PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… A new multi-media resource, based on what people with Intellectual Disabilities, family carers and professionals believe to be important when caring for people with intellectual disability at end of life, is … Continue reading

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The PEPIC19 survey: An international survey of end-of-life and palliative care of people with intellectual disabilities

START OF NEW SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today, Irene Tuffrey-Wijne, Co-chair of the European Association for Palliative Care Reference Group on Intellectual Disability, encourages everyone involved in providing end-of-life and palliative care to complete this important survey. … Continue reading

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DIAdIC: Supporting people with advanced cancer and their informal caregivers in their psycho-social needs

Prof Joachim Cohen, Project Coordinator, explains how the DIAdIC project will test and evaluate a nurse-led person-to-person approach and online learning that aim to support people with advanced cancer and their family caregivers. With almost four million people in the … Continue reading

Posted in DIAdIC: Dyadic Psychosocial Interventions for people with Advanced cancer and their Informal Caregivers, PATIENT & FAMILY CARE, PSYCHO-SOCIAL ISSUES, RESEARCH | Tagged , , , | 1 Comment

Stand by me: Honouring the courage and dedication of all caregivers in the time of coronavirus

Today (April 30), it’s the International Day of Jazz. We’re delighted to share with you a special recording from ‘The Palliators’, a band of Dutch people working professionally in palliative care as caregivers and researchers, and a volunteer. Carlo Leget, Professor … Continue reading

Posted in Coronavirus and palliative care, PATIENT & FAMILY CARE, The Arts in palliative care | Tagged , | Leave a comment