DIAdIC: Supporting people with advanced cancer and their informal caregivers in their psycho-social needs

Prof Joachim Cohen, Project Coordinator, explains how the DIAdIC project will test and evaluate a nurse-led person-to-person approach and online learning that aim to support people with advanced cancer and their family caregivers. With almost four million people in the European Union newly diagnosed with cancer every year, the impact of this new project could be enormous ….


Prof Joachim Cohen.

DIAdIC (Dyadic Psychosocial Interventions for people with Advanced cancer and their Informal Caregivers) is a transdisciplinary, cross-national research project involving six European countries: Belgium, Denmark, Italy, Ireland, The Netherlands and the United Kingdom. The project will test and evaluate two types of support strategies for persons with advanced cancer and their family caregivers. An important characteristic of these support strategies is that they are aimed at the patient-caregiver dyad as a whole, instead of targeting the patient or the caregiver separately.

FOCUS+ utilises a nurse-led person-to-person approach. A specially trained nurse will have three extensive consultations with the patient-caregiver dyad, usually in the patient’s home, over the course of three months. iFOCUS provides the person with cancer and the family caregiver access to four online (web-based) sessions over a period of three months. The option of delivering a psycho-social intervention via a computer programme fits well in the era of telemedicine. The importance of providing support remotely has been highlighted during the COVID-19 pandemic. Ultimately, this type of intervention may even prove to be more cost-effective.

The DIAdIC Consortium.

Both FOCUS+ and iFOCUS address the same five core components:

  • Supporting Family involvement and improving mutual communication
  • Supporting Outlook and meaning
  • Increasing  Coping effectiveness
  • Reducing    Uncertainty
  • Teaching     Symptom management and giving confidence to handle specific tasks and problems.

This work builds on the work of Professor Laurel Northouse and her team at the University of Michigan School of Nursing who developed the original FOCUS intervention. For FOCUS+ and iFOCUS a number of adaptations have been made to ensure that the interventions are more relevant to their context as part of this study.

The aim of the DIAdIC project is to evaluate whether the FOCUS+ and iFOCUS strategies increase the quality of life and self-efficacy of both the person with cancer and their family caregivers. It will also evaluate the cost-effectiveness of both approaches and the impact on the use of professional healthcare resources.

With this project, coordinated by Joachim Cohen, Peter Hudson and Aline De Vleminck, we hope to contribute to knowledge about how we can best support persons with cancer and their family caregivers.  And, in the longer term, we hope to positively impact the quality of life of people with cancer and their family caregivers across Europe.

 Links


JOIN PALLIATIVE CARE SPECIALISTS FROM ACROSS THE WORLD AT #EAPC2020 –11th EAPC WORLD RESEARCH CONGRESS ONLINE 2020 – interactive online sessions 7 to 9 October 2020.

A blend of: On-demand Sessions, Live Presentations, Live Panels hosted by international experts, Children’s Seminar, Poster Sessions, and EAPC Group Meetings will bring you all of the latest research from the world’s top researchers in palliative care. CME accreditation will be available. Masses of content will be available on demand from 21 September until January 2021. Be a part of the first-ever EAPC World Research Congress Online. Learn and interact with leading researchers and chat with other registered delegates from the global palliative care community – all in the safety of your own home or office. Register here. Meet some of our plenary speakers on the EAPC YouTube channel.

This entry was posted in DIAdIC: Dyadic Psychosocial Interventions for people with Advanced cancer and their Informal Caregivers, PATIENT & FAMILY CARE, PSYCHO-SOCIAL ISSUES, RESEARCH and tagged , , , . Bookmark the permalink.

1 Response to DIAdIC: Supporting people with advanced cancer and their informal caregivers in their psycho-social needs

  1. Pingback: EAPC blog: Supporting people with advanced cancer and their informal caregivers in their psycho-social needs - DIAdIC

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.