More about the EAPC Social Media team . . .
The EAPC social media team comprises a group of healthcare professionals involved in hospice and palliative care who represent different disciplines and countries of Europe. Through the EAPC blog, and other social media channels, we provide an online platform for opinion, debate and personal perspectives on palliative and hospice care in Europe and beyond. Our posts are short, varied and accessible and aim to keep busy practitioners up to date with latest initiatives in the worldwide palliative care community.
Building on our combined skills, experiences and interests, our social media editorial board provides a robust, timely and supportive reviewing process for all articles submitted for publication on the blog. This enables us to publish good quality, topical content that we hope will inform and educate as widely as possible.
About the EAPC blog – we publish articles twice a week currently reaching health and social care practitioners, academics, researchers and advocacy consultants involved in palliative/end-of-life care. Viewing statistics for 2020 show that our blog reached almost 200 countries and overseas protectorates of the world. Europe (56%), North America (18% ), Asia (10%), Oceania (7%), Latin America and the Caribbean (6%), and Africa (2%). Viewing statistics are accumulative as people frequently look at posts months, or even years, after initial publication. You can access the blog via the EAPC website www.eapcnet.eu or at www.eapcnet.wordpress.com
Julie has been CEO of the European Association for Palliative Care since January 2015. Originally a nurse, Julie has worked in palliative care for nearly 30 years and has worked in both adult and children’s palliative care. She has held a variety of posts in clinical care; management; research; policy and the voluntary sector. She successfully completed a PhD by research exploring respite in children’s palliative care. She has written and published widely and is a member of the editorial board of the International Journal of Palliative Nursing. Julie is also currently chair of the Worldwide Hospice and Palliative Care Alliance.
Avril joined the EAPC in 2012 in a part-time consultancy role to develop the EAPC blog and wider social media activities, working from her home in Brighton, UK. Before this, she worked for 31 years at St Christopher’s Hospice in London, where she managed the Hospice Information Service. Much of her past work has focused on producing newsletters; she edited the print magazine, ‘Hospice Information Bulletin’, from its launch in 1987 until it closed in 2011, and she was senior editor of the International Hospice and Palliative Care Association Newsletter from 2014 until November 2017. Retirement having seemingly eluded her, Avril is delighted to continue her links with palliative care through her work with the EAPC and, in a small way, to help in bringing to life the remarkable stories of palliative care across the world.
Eduardo Garralda Domezain has been a research assistant for over five years with the ‘ATLANTES’ Research Programme, at the Institute for Culture and Society (ICS), University of Navarra, Spain. With a history degree background and more than four years’ experience working in a history archive, Eduardo offers support with all the transferrable skills acknowledged in records management, classification, organisation and data collection, as well as contributing with a social science approach. He is particularly involved in projects related to international development of palliative care from a public health perspective and has contributed to several publications including the APCA Atlas of Palliative Care in Africa and the Atlas of Palliative Care for the Eastern Mediterranean Region.
Sandra Martins Pereira is a Principal Investigator funded by the Portuguese Foundation for Science and Technology at CEGE: Research Center in Management and Economics, Universidade Católica Portuguea, in Portugal. She is group leader of the palliative care research group within the research area of Sustainability and Ethics. She is also an Invited Lecturer in the PhD programme in Bioethics, Institute of Bioethics, where she teaches and coordinates several education activities on ethics at the end-of-life and empirical research methods. She is also Invited Assistant Professor on the Master’s course in palliative care at the Institute of Health Sciences and Scientific Coordinator of the Portuguese Observatory on Palliative Care. Dr Martins Pereira has post-doctoral research training in palliative and end-of-life care research and a PhD and masters in bioethics. She has been screening editor and a member of the editorial board of Palliative Medicinesince 2016. In 2019, Dr Sandra Martins Pereira was elected a member of the board of directors of the European Association for Palliative Care (EAPC) and nominated as Vice-President.
Nicoleta Mitrea is Director of Education and Development – Nursing at Hospice “Casa Sperantei” (HCS) in Brasov, Romania. She began her nursing career in paediatrics, moving into palliative care in 1998 when she joined HCS as a homecare nurse. Nicoleta organises, supervises and teaches palliative care at all three levels of education: basic, advanced and specialised; she coordinates the national specialization programme for nurses working in palliative care services and is also involved in education in several Eastern European countries. Since 2012, she has been an associate lecturer at the University of Transylvania in Brasov. Nicoleta graduated with a Master’s in Palliative Care in 2012 and her Medical Doctoral Studies in November 2017. She has never stopped her caring role for patients and is currently performing her clinical duties in the inpatient unit for adults. Since 2016, she has taken up running marathons to fundraise for the care that is delivered free of charge by HCS to patients (children and adults) and their families. Born and raised in Brasov, Romania, Nicoleta is married to Valentin and has a 12-year-old daughter, Maria.
Cathy Payne joined EAPC in October 2018 as a part-time Project Officer alongside her role as a Programme Manager for All Ireland Institute of Hospice & Palliative Care. Cathy has worked within specialist palliative care since 2004, as a clinical dietitian, a lecturer and a researcher. Her PhD, which she completed in 2015, explored the role of rehabilitation within palliative care and she is the founder and co-administrator of the Palliative Rehabilitation Facebook Group which boasts a membership of over 2,400 healthcare professionals from across the world. She loves to explore ways of using digital technology and social media to support education initiatives and clinical practice development.
Lukas Radbruch is Professor of Palliative Medicine at the University of Bonn, leading the departments of palliative medicine at the University Hospital Bonn and at the Malteser Hospital Bonn/Rhein-Sieg. Before this, he worked for 20 years in pain management and palliative care at the universities of Cologne and Aachen. His research interests are symptom control (pain and fatigue), but also ethical issues such as the wish for hastened death and evaluation of care delivery.
Lukas was president of the EAPC from 2007 to 2011, and – though initially sceptical about the use of social media – soon became a fervent advocate for the social media activities of the EAPC, and is a founder member of our team. He is currently president of the German Association for Palliative Medicine and Chair of the Board of Directors of the International Association for Hospice and Palliative Care. He has been a member of the World Health Organization (WHO) Technical Advisory Group and a commissioner on the Lancet Commission on Palliative Care.
Lyn Silove is a specialised Palliative Care Resource Nurse at the Fondation Oeuvre de la Croix Saint-Simon in Paris, France. Lyn’s international interest comes as no surprise, born in South Africa, educated, and trained as a nurse, in England, and moved to Paris in 1992 where she has been working in palliative care (PC) for over twenty years. For the past nine years, Lyn has worked with several multidisciplinary teams as a specialised PC Resource Nurse in a large hospital at home organisation in and around Paris, at the Fondation Oeuvre de la Croix Saint- Simon. She also contributes on an educational, strategy and policy-making level. A member of the French PC Association, the SFAP, she co-founded, and heads, their ‘International Relations Working Group’, a national group of PC care experts who share her belief in the importance of building and strengthening global involvement in all areas of PC. Lyn enjoys being involved with national and international initiatives. In 2017 she qualified for the European EUPCA Leadership Course.
Mark Taubert is a Clinical Director, NHS Hospital Consultant and Honorary Senior Lecturer in Palliative Medicine. He works for Velindre NHS Trust, Cardiff University and the Welsh End Of Life Care coalition, Byw Nawr, where he is the clinical lead. He has taught for Harvard Medical School and in particular seeks to improve public understanding of care in the last years of life. He has created the TalkCPR website and app to help inform Do Not Attempt Cardiopulmonary Resuscitation decisions and has also given a Ted Talk on language in palliative care. Mark is an advisor to the Digital Legacy Association.
If you have a story to tell, research to share, please consider writing for the EAPC blog. To contribute, and for all enquiries relating to our social media activities, please email Avril.
For general enquiries about the EAPC, please email the head office team.
Join the EAPC palliative care social media community