Category Archives: Intellectual disabilities

Widening Access to Palliative and End of Life Care for People with Intellectual Disabilities: A multi-media, open access online resource

Posted on November 2, 2020 by pallcare

CONTINUING OUR NEW SERIES: PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… A new multi-media resource, based on what people with Intellectual Disabilities, family carers and professionals believe to be important when caring for people with intellectual disability at end of life, is … Continue reading →

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The PEPIC19 survey: An international survey of end-of-life and palliative care of people with intellectual disabilities

Posted on October 28, 2020 by pallcare

START OF NEW SERIES ON PALLIATIVE CARE AND INTELLECTUAL DISABILITIES… Today, Irene Tuffrey-Wijne, Co-chair of the European Association for Palliative Care Reference Group on Intellectual Disability, encourages everyone involved in providing end-of-life and palliative care to complete this important survey.  … Continue reading →

Posted in EAPC ACTIVITIES, EAPC Task Forces/Reference Groups, Intellectual disabilities, PSYCHO-SOCIAL ISSUES | Tagged | Leave a comment

Abstract Watch: Current thinking on palliative and end-of-life care for patients living with intellectual and developmental disabilities

Posted on January 6, 2020 by pallcare

Barry R. Ashpole is a Communications Consultant, Educator and Media Specialist from Ontario, Canada, who contributes a bi-annual post to the blog. Here, he presents a selection of articles that focus on ‘current thinking’ on palliative and end-of-life care for patients … Continue reading →

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Palliative Care for People with Intellectual Disabilities: An International Perspective – An interview with Dr Irene Tuffrey-Wijne, winner of the EAPC Post-Doctoral Award

Posted on May 19, 2017 by pallcare

LIVE FROM THE 15th EAPC WORLD CONGRESS IN MADRID . . . Highlights of every EAPC Congress are the EAPC Researcher Awards, which recognise and support the work of scientists and clinicians who make an outstanding contribution to palliative care … Continue reading →

Posted in 15th World Congress Madrid, EAPC Researcher Awards, EAPC World Congresses, Intellectual disabilities, PATIENT & FAMILY CARE | Tagged | Leave a comment

Palliative care for people with intellectual disabilities: The EAPC White Paper in a nutshell

Posted on February 22, 2016 by pallcare

Irene Tuffrey-Wijne is Associate Professor, Kingston University & St George’s University of London, and Chair of the European Association for Palliative Care (EAPC) Task Force on Intellectual Disabilities. Here, she explains the background to her  longer article published in the January/February … Continue reading →

Posted in EAPC Task Forces/Reference Groups, EAPC White Papers, Guidelines & Recommendations, EAPC-LINKED JOURNALS, European Journal of Palliative Care, Intellectual disabilities | Tagged , | Leave a comment