Category Archives: PATIENT & FAMILY CARE

Do relatives think there should be research trials with dying patients?

Although all research requires ethical approval, some people may feel that those who are dying should not be asked if they want to participate in research.  But what do relatives of those dying think about this? For December’s Palliative Medicine’s … Continue reading

Posted in EAPC-LINKED JOURNALS, Journal of Palliative Medicine, Palliative Medicine: Editor's Choice, PATIENT & FAMILY CARE, RESEARCH | Leave a comment

Improving patient comfort when withdrawing mechanical ventilation at the end of life.

There were many highlights at the EAPC 12th World Research Congress, including the excellent posters which were on display.  The overall poster winner was Margaret L. Campbell and colleagues from Wayne State University, United States of America.  For the next … Continue reading

Posted in EAPC 12th World Research Congresss, EAPC World Congresses, Palliative Care and Intensive Care, PATIENT & FAMILY CARE, RESEARCH | Leave a comment

Doing things differently, sharing power and holding to account: the evolution of No Barriers Here.

Over recent years, there has been an increased awareness of the inequalities in healthcare provision and palliative care. Individuals and organisations are working to change this, and today we hear from Gemma Allen and Dr Jed Jerwood about an exciting … Continue reading

Posted in ADVANCE CARE PLANNING, Intellectual disabilities, Minority Communities, PATIENT & FAMILY CARE | Leave a comment

Patient Navigators: What works, how, when and for whom?

Older people with cancer are at disadvantage when it comes to timely access to high-quality supportive, palliative, and end-of-life care. Dr. Joni Gilissen, Dr. Barbara Gomes and Prof. Lieve Van den Block hope that the new EU NAVIGATE project might … Continue reading

Posted in EAPC COLLABORATIVE PROJECTS, EU Navigate, PATIENT & FAMILY CARE | Leave a comment

Don’t Say She Lost Her Battle: making a film about my mum’s death.

The words we use matter. Especially when discussing subjects that inform end-of-life decisions. Today, Oisín Liam Power, Irish writer and film maker, tells us about the inspiration behind his new short film – and why metaphorical war language should be … Continue reading

Posted in ADVANCE CARE PLANNING, INTERVIEWS & TRIBUTES, PATIENT & FAMILY CARE | Leave a comment