Cochrane is a global independent network of people interested in health, including researchers, professionals, patients, and carers. Anna Erskine, Managing Editor of the Cochrane Pain, Palliative and Supportive Care (PaPaS) Review Group, explains how EAPC members and supporters can contribute to this important survey.
We publish systematic reviews in the Cochrane Library to help people make informed decisions about health care. It’s really important to us that we focus our research on questions that are a priority to the community. That’s why we have launched this priority setting survey on adult palliative care and are asking for your help.
We want to hear from anyone with experience or an interest in this topic area. For example, patients and carers, healthcare professionals, researchers and policy makers.
The short survey comprises four sections:
- We ask you to rank our proposed priority questions in order of their importance to you.
- We ask you to add any other suggestions not on that list that you think are important, and explain your choices.
- We ask you to tell us of any other existing priority setting work that you might be aware of.
- We ask you to tell us a limited amount of information about you, and submit your responses.
The survey should take between five and 15 minutes to complete, depending on how much you want to say. It is available in three languages, and we have a team of volunteers to help translate the Spanish and Chinese responses into English. You can find the survey by following these links:
- English (https://www.surveymonkey.co.uk/r/HN6YR5K);
- Spanish (https://www.surveymonkey.co.uk/r/ZJHW9LT);
- Simplified Chinese. (https://www.surveymonkey.co.uk/r/ZQK8PFZ).
We encourage individuals, groups and organisations to complete the survey and anyone can share these links with their own communities and networks. Help us to develop trusted evidence that can really help guide and improve palliative care.
What happens next?
After the closing date of 28 February 2021, we will analyse all the responses and produce a final list of the top priority questions. This list will help us decide where new Cochrane Reviews are needed, and whether any existing reviews require updating.
You can find more information and project updates on our website. You can also sign up to receive updates via our newsletter, follow us on Twitter and Facebook, or contact me at firstname.lastname@example.org.
This survey focuses on adults; priorities for children and adolescents will be addressed in a separate exercise. Your participation is voluntary and no payments are offered. If you have relevant financial conflicts of interest you may not be eligible to participate; for more information, see the Cochrane policy or contact us. We are unable to offer medical advice. Data will be retained on the SurveyMonkey website in line with their policy. Downloaded data will be anonymised and retained on password protected files and encrypted computers. Individuals’ data will not be shared with a third party.
Our funding statement: The Cochrane Pain, Palliative and Supportive Care Review Group (PaPaS) is funded by the National Institute for Health Research (NIHR) via Cochrane Infrastructure funding. The views expressed are not necessarily those of the NIHR or the Department of Health and Social Care.