In the run-up to the 11th World Research Congress of the European Association for Palliative Care (EAPC) in Palermo, Sicily, in 2020, leading contributors will be giving a sneak peek of the congress programme. Today, Franca Benini, Myra Bluebond-Langner and Monika Fuehrer tell you more about the Paediatric Palliative Care Research Day on Friday 15 May 2020.
Following on a most successful paediatric palliative care day at the 16th EAPC World Congress in Berlin in May 2019, we are pleased to be invited to have an entire day dedicated to research in paediatric palliative care at the 11th EAPC World Research Congress in Palermo.
This is an unprecedented opportunity to share our work not only with colleagues in the world of children’s palliative care, but also with colleagues in adult palliative care. It is an opportunity we cannot afford to miss!
Putting Research into Practice
The theme for the day is Putting Research into Practice. We plan to focus on four areas in paediatric palliative care research of immediate concern to clinicians:
- Advance Care Planning.
- Interventions in Pain and Symptom Management.
- Psychosocial Interventions.
To this end, we have divided the day into four ninety-minute sessions. Each session will begin with an invited talk followed by oral presentations selected from submitted abstracts. And that’s where all of you come in! We are looking for posters and presentations that will help us to drive the field forward and dialogue that will open up new areas of investigation and collaboration.
We have come a long way in paediatric palliative care research in the last 30 years – from lone researchers, with few outlets for dissemination of our work, to collaborations with other researchers, at other institutions. We now present our work at major disease- specific and palliative care conferences. Our research can be found not only in disease- specific and professional journals, but also in palliative care journals. And – important for change – our work is coming to the attention of not just clinicians but also policy makers.
Moving forward, we need not only to increase our understanding of patient, parent and clinician needs and behaviour but also the institutions in which care is delivered. We need to conduct this research in a way that reflects a thorough, indeed critical, understanding and appraisal of the theories and methodologies we use to underpin that work; not to mention the changing landscape of western medicine and palliative care. Moreover, we need to be moving more swiftly in the direction of putting the results of our research into practice – be it through clinical guidance, education, actual pharmacological and non-pharmacological interventions or policies, which will reduce suffering and enhance wellbeing.
Our speakers include: Judith Rietjens (Department of Public Health of Erasmus MC in Rotterdam, the Netherlands) on Advance Care Planning; Myra Bluebond-Langner (University College London – Great Ormond Street Institute of Child Health, Louis Dundas Centre, UK) on Communication; Joanne Wolfe (Boston Children’s Hospital and Dana Farber Cancer Institute Harvard University, US) on Interventions in Pain and Symptom Management and Monika Fuehrer (University of Munich, Dr van Hauer Children’s Hospital, Germany) on Psychosocial interventions.
We have asked the speakers to consider not only the state of the science in each of these areas and what is needed in the way of research going forward, but also what is ready to put into practice right now in the way of tools, interventions and guidance in each of these critical areas of paediatric palliative care.
How you can contribute
In their recent post on the EAPC blog, Augusto Caraceni and Sebastiano Mercadante (respectively Chair of the EAPC Research Network and Chair of the Local Organising Committee), spoke of the increasing global interest in research in palliative care and encouraged readers to submit abstracts for #EAPC2020. We too, look to the posters and oral presentations to enrich the dialogue in paediatric palliative care research with contributions to theory, method and evidence base. So, if you want to be part of Putting Paediatric Palliative Care Research into Practice please do submit an abstract. The closing date for abstracts is 31 October 2019.
We look forward to welcoming you to this “game-changing” day in Palermo.
More about the authors…
Franca Benini is Director of Paediatric Palliative Care – Pain Service, Department of Women’s and Children’s Health, University of Padua, Padua, Italy.
Myra Bluebond-Langner is Professor and True Colours Chair in Palliative Care for Children and Young People at University College London – Great Ormond Street Institute of Child Health, Louis Dundas Centre, London, UK.
Monika Fuehrer is Associate Professor of Paediatric Palliative Care at the University of Munich, and Director of the Center for Paediatric Palliative Care at Dr von Hauner Children’s Hospital, Munich Germany.
- Find out more about the 11th EAPC World Research Congress here.
- Submit your abstract here. Deadline for submissions: 31 October 2019.
- Register before 16 February 2020 to get a discounted registration fee.
- Follow us on Twitter@EAPCvzw – our official congress hashtag is #EAPC2020