Big changes have recently been made to the web page of the European Association for Palliative Care (EAPC) Primary Care Reference Group. Scott Murray and Sébastien Moine, Co-chairs of the Primary Care Reference Group, unveil some of the great resources now available on their web page and elsewhere in support of early palliative care.
EAPC Primary Care Reference Group members last year produced a short video for health and allied health professionals to illustrate when to trigger an early palliative care approach in patients with different illnesses. That video, based on our BMJ analysis in 2017, was very popular on Facebook and Youtube. We have now produced a user guide with the video to help you use it to teach colleagues how to identify patients for palliative care or advance care planning. Moreover, translations in French, Spanish, Brazilian Portuguese and Italian are now available from our updated web page.
‘How to live and die well’ – a video for the general public
Also, now available on our web page is a version of this video to use with the general public or patients, which is entitled ‘How to live and die well’. It comes with documents that are useful to help individuals view the video and also to help you facilitate or run a group discussion with the video. This was recently publicised in a BMJ blog entitled “To boldly go”. We have made this video so that many people might use it to explain to the general public about the benefits of thinking ahead and planning for what might happen towards the end of life. This is to help us promote a better public understanding of what living and dying with different conditions means, and how we all have a role to play to make things as good as possible.
Toolkit for the development of palliative care in the community
We have also produced translations of our toolkit to help palliative care specialists or generalists promote palliative care in the community. The toolkit is now available in French, German, Romanian, Croatian, Italian and Brazilian Portuguese. We recommend you to have a look at this to see how it highlights the four main areas to consider when promoting palliative care in the community: useful policies, adequate services, education, and availability of medications. The French and German translations of the toolkit are downloadable from our web page, and we are keen to support EAPC members use these in their own countries.
Good progress is also being made with various tools to help identify people who might benefit from palliative care. The Supportive and Palliative Care Indicator Tool (SPICT) has now been translated into 10 languages. We held a most fruitful inaugural SPICT International Conference in Edinburgh on 2nd Feb when 100 participants presented developments from Australia, Brazil, Germany, Denmark, Nepal and England. Please see our web page for details also about other identification tools such as PIG, RADPAC, NECPAL.
Let’s get palliative care integrated into the care of people with all conditions in all countries! Let’s help the general public understand how to live and die as well as possible!
Looking forward to seeing everyone at our parallel session and open meeting on Friday 25th May in Bern at the 10th EAPC World Research Congress.