Talk CPR Project – improving communication in palliative illness

Dr Mark Taubert is Clinical Director for Palliative Medicine, Velindre NHS Trust, Cardiff, Wales, United Kingdom, and a member of the European Association for Palliative Care (EAPC) social media team. Here, Mark explains how a new website aims to dispel myths and answer questions people may have about cardiopulmonary resuscitation.

Dr Mark Taubert

Dr Mark Taubert

In 2015, as part of a Welsh National Health Service (NHS) initiative: ‘Sharing and Involving Do Not Attempt Cardiopulmonary Resuscitation’, we started work on a project to improve communication aids for people with palliative illness. The result was the ‘TalkCPR’ project, co-designed by patients and carers. It aims to improve communication and dialogue between patients and their healthcare professionals with regard to Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) decisions.

The venture represents a collaborative effort between all NHS Wales Health Boards and Trusts, as well as the Dying Matters in Wales charity Byw Nawr and support from the Bevan Commission as a Bevan Exemplar project. Initially, two videos (see them here  or just Google: ‘TalkCPR’) were produced for patients and carers who wanted to know more about this topic and required a resource to help shared decision-making with their clinical team. Two further videos were developed to provide healthcare professionals with tips and approaches to start this difficult conversation. Provisions have also been made for blind, partially sighted and deaf patients.

The impact of these videos on patients, nurses and doctors was measured through pre- and post-video surveys and a focus group session. Results showed a significant increase in the confidence of staff with regard to openly discussing DNACPR after watching the videos. The evaluation and Improving Quality Together (IQT) methodology used can be viewed here.

NHS Wales Award – Dr Mark Taubert (5th from left) with Baroness Dr Ilora Finlay and colleagues

TalkCPR wins the NHS Wales Award – Dr Mark Taubert (5th from left) with Baroness Dr Ilora Finlay and colleagues at the presentation ceremony

These short films have been made available in each Health Board and Trust in Wales and several English Trusts have come forward and are using the videos in their own settings. A media campaign has made the #TalkCPR project very prominent in the public domain, with Benedict Cumberbatch reading out a letter at Hay Festival mentioning this NHS Wales project and a Guardian article on DNACPR which went viral. Both NICE (the National Institute for Health and Care Excellence) and the GMC (General Medical Council) have published the TalkCPR website resource and the project has won the 2016 NHS Wales award for improving quality.

We hope that good quality video and website information for patients around difficult areas such as CPR can inform part of a more sharing approach, to allow patients and their proxy to be involved in key decisions and to express their views in advance of a deterioration.

Links

 

EAPC17_Header_254x71-2Applications for EAPC  Researcher Awards close 30 November 2016
The EAPC awards scientists’ and clinicians’ outstanding contributions in the field of palliative care. The awards aim to highlight the individual´s career development and their potential for the future. Please check our website for further information. Applications will be accepted until 5pm CET on November 30, 2016.

This entry was posted in ADVOCACY & POLICY, PATIENT & FAMILY CARE, SOCIAL MEDIA and tagged , . Bookmark the permalink.

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