Dr Jeroen Hasselaar, Dr Marieke Groot and Professor Dr Kris Vissers, Radboud University Medical Center Nijmegen, the Netherlands, Coordinating Center for the Integrated Palliative Care Project.
On 29 January 2013, researchers from The Netherlands, Germany, Hungary, the United Kingdom, Belgium and Spain met in Amsterdam for the kick off meeting of a new European project, InSup-C, that aims to contribute to a better understanding of integrated palliative care in Europe. Also present at the meeting were representatives from the European Association for Palliative Care (EAPC) and the World Health Organization (WHO).
Integrated palliative care
The number of people living and dying with advanced stages of cancer and other chronic diseases in Europe has increased and is expected to rise further. These patients, often in need of adequate symptom alleviation, can be found in any place or care setting. This can result in fragmented care, an undesirable outcome for patients and caregivers in such a vulnerable phase of their lives. Working as a researcher and a health policy worker now for about a decade, I felt that there was a need to pay more attention to this topic. This was the starting point of our project.
The project, funded by the EU, will focus on integrated palliative care. Integrated care involves the integration of administrative and organisational aspects as well as clinical guidelines and service delivery in order to promote collaboration and to improve the experiences of patients and caregivers in Europe. This project will investigate integrated palliative care initiatives across Europe and aims to explore the requirements for best practices. Involvement of patients and local caregivers will be pivotal.
Building links across Europe
As a coordinator of the project, I was very glad to meet with our consortium of well-known researchers in the field of palliative care in Amsterdam, in our national science museum, NEMO. This was an inspiring place for the setting-up of a new and challenging research project. We hope that this project will contribute to a better understanding and implementation of integrated palliative care, and that it will stimulate palliative care collaboration across Europe for the sake of palliative patients.
Join us in Prague…
At the 13th EAPC World Congress in Prague we will have a meeting on Saturday 1 June at 13h30 to 14h00. People who are interested are welcome to come and share ideas. If you can’t attend but want to share ideas please email us.
Follow the blog later this week when Dr Sean Hughes will be contributing another post on the InSup-C project.