Jenny van der Steen, EMGO Institute for Health and Care Research, Department of Nursing Home Medicine, VU University Medical Center, Amsterdam, Netherlands
More than 80 experts in palliative and dementia care from about 25 countries across Europe and elsewhere are being invited to evaluate a set of recommendations on palliative care in dementia.
This set of 11 domains, with 57 recommendations, has been developed by a core team of experts led by researchers from the VU University Medical Center, Amsterdam and the University of Bonn. The recommendations represent best practice and are based on evidence where available. Additionally, because of the limited evidence base, the evaluation is given shape in a Delphi consensus procedure that aims at a broad consensus on how to provide optimal care for older people with progressive dementia. The experts’ feedback will help to revise the recommendations where necessary. It will also inform on possible remaining areas where international consensus is not achieved. This will all feed into a final set of recommendations that will form the core piece of an EAPC white paper on palliative care in dementia.
The participants in the Delphi round will make an important contribution to improving and setting priorities in palliative care in dementia. We sincerely appreciate their support. We hope to publish the white paper as soon as possible after the Delphi procedures, either later this year or in 2013.